When I first found out, I was crying again because I thought for sure they would tell me he was fine. He seems so healthy and perfect to me. And I know he is perfectly made by God and I have to trust this is his plan for now. I know it is manageable and the nurse kept saying that we just have to watch for signs and know when to take him in for treatment, but otherwise he should grow up like any other child. We just have to make some adjustments for him. We know that once he starts to eat he will have to eat a low fat diet and will have to keep from going long without eating. I thank you all again for your concerns for us and all of your prayers! We know that is what is getting us through and we are so thankful Nate is such a good eater right now. He is already 8 pounds and is getting chubby cheaks. We will pray now that his carnatine levels will rise and that if he has to be on this supplement, that his body will handle it well (supposedly harsh on the stomach sometimes). I will keep you updated as we have more testing and if sickness enters our house I will post it so that we can have more people praying!
I wanted to share one of the things that brought tears to my eyes. It is really humbling to hear when people are praying for your family and are taking time out of their day to bless you. My dad called me to tell me that Nathan is being prayed for around the world. My parents have a couple living with them from Chile and their church over there prayed for Nate for an hour in their church service last Sunday and then had Nate on a 24 hour prayer chain so that for an entire day someone was praying for him each hour. How amazing!!! We are confident that God is taking care of our baby and is using you all to help.
Thank you thank you!